Garrett Sapp, a sixth grader in our FIRST KIDS Ministry, was diagnosed with Duchenne muscular dystrophy at three years old. Duchenne is a progressive muscle-wasting disease very similar to ALS, but in children.
Duchenne results in progressive loss of strength. The progressive muscle weakness leads to serious medical problems, particularly issues related to the heart and lungs. Young men with Duchenne become fully wheelchair dependent by age 12 and typically live into their late twenties. There is no treatment for most forms of Duchenne (Garrett’s form included) and no cure.
You can help support Garrett and all those living with Duchenne by participating in Garrett’s Hero Run. Last year more than 300 people from Maury County and the surrounding area participated. You can sign up to walk or run at this family-oriented 5K and 1-mile fun run. You can also provide a gift basket for the silent auction. The gift basket can be themed around a specific state or around the theme ‘Choose Joy’ where you build the basket with things that bring you joy (music, or sports, or travel, etc.).
Contact Amber Sapp, Garrett’s mom, with any questions or to volunteer to help: 615.482.4993.